So after a very interesting appointment with the surgeon, Dom is now on the waiting list to have a lobectomy. The surgeon showed us the CT scan of Dominic's chest, which was fascinating. The cysts (lots of little ones) fill up about half to two thirds of the lower right lobe of Dominic's lung.
We wrote down a list of questions to ask, and when we got all the answers it came down to a straight-forward (though not easy) choice:
- do nothing, risk infections every time he gets a nasty bug, increased risk of lung cancer in mid life - lots of future stress
- put Dom through a surgery, recovery period, and put ourselves through a huge amount of now-stress, but be able to pretty much forget about it within a month of the surgery
Choosing now-stress and surgery is not an easy thing to do, but fingers crossed it's the right choice to make. I asked the surgeon what he'd do if it were his son (or grandson), and he was 100% positive that surgery was the way to go. His actual answer was something like "there's no hard data on any of this, but I am completely sure that surgery is the right choice. Not enough to report you to CYFS for neglect if you don't do it, but I'm entirely convinced..."
I was reassured by two pieces of information:
a) One of us gets to stay with Dom in hospital. We can't go in to the operating theatre, but we can be with Dom before and after.
b) They don't have to go through any ribs - they can go between. If it all works out well, they may not have to separate any muscles. This means the recovery time is quite short - we should be able to go home after 3 or 4 days.
So, we're on a waiting list which is full for the next 6 months, hoping for an operation in early summer. It's possible that another major case could be cancelled and we'd be called to come in the next day, but that's rather unlikely.
We're hoping the operation isn't too close to his birthday or Christmas :-)
5 comments:
Sounds like you have made a sensible and thought our decision. We both wish you guys the best. We might be back by then! Omg!
Beau says he has stuff he wants to ask you (crazy old doctor).
Love
I think you've made the right decision definitely. It will not be very fun to have Dom in the hospital for a little while, but if you hadn't gone through this now, any time he got a chest infection in the future you'd end up thinking about how you could have prevented it (let alone more serious stuff).
Who's your surgeon out of curiosity? I presume it's through Wellington.
Love to you and yours
Kevin Pringle is the surgeon - he is pretty much the main specialist we've been dealing with although he has also been getting check ups every 3 months from Dr Patel as well.
Apparently we will be in Ward 19 in Wellington unless it ends up being so far in the future that they are half-way through moving into a new building.
Dear freaking god guys ! The poor little soul ! I hope everything goes okay for him ! Man. I can only sort-of put myself in your position and I start to lose it. I hope you're doing okay too ! Sorry if this isn't terribly well written - I've been writing reports since 8 this morning and I've still got heaps to go - brain is a bit mangled...
Good to have a decision, good to know what is involved, good to have a doctor who answered the questions properly.......and by this time next year, good to have it all behind you. The tooth is impressive, being set in such a gorgeous face! Lots of love, Mum
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